Wednesday, April 22, 2020

keeping safe


Sorry about the lengthy absence.  First of all, my medical adventure then it was Covid19.

First major thing was when Tim dropped me off at Bay Area hospital for a dialysis appointment.

They would not let him come in even to use the inside toilet. 
He was directed to a PortaJohn.  He was incensed!  Although he did tell me later that the toilet paper was luxurious.  In his bathroom ratings, Porta Johns rank as equivalent to third world squat slot toilets.

Next occurrence was visit to wound nurse for my brand new shiny cardiac pacemaker.  The lobby window had a box marked clean pens and an empty one labeled dirty.  

The bank experience was interesting.  We went to get a durable medical power of attorney notorized.  The bank official had the lobby locked. She opened and let us in.  Tim was incensed that he had to sit six feet away.  I sat at the desk.  Lady looked the document over and witnessed my signature. We left triumphant.

The local Safeway store had a sign, 96 maximum customers at once.  We shopped and exited on the other end, which again disturbed husbands normal shopping pattern.  There was a lady in full PPE greeting us. That pretty official.

The gas stations have been granted an order to allow patrons to pump their own gas.  Big Woo.  Would rather have some else do it as I have not voluntarily pumped my own gas for decades of not centuries.  

Today we will drive to my doctors office for an appointment.  We sit there and call the number, someone brings out a tablet and we shall commence.  There should probable be a patron saint to communications.

Sunday, April 12, 2020

Everything and a kitchen sink.

values have fallen.  Go to hospital for dialysis.  Away we went.  Tech looked at shunt and said one side is good the other side is immature.  Surgeon came in and said he would schedule me for next day for a shunt on neck then dialysis.

Did that the next day.  Put in room postop.  Developed afib.  Put in ICU.  Then nex t day had dialysis.  One more day, another dialysis.  Sent home.

At home that night becme dyspneic. Very short of breath.  Went to Er.  They said you were given a lot of this.  I was given a lo of that.  Heart went way slow.  Transferred via ambulance to BayArea Hospital.  Ride like a carnival.  Got there in Er. They say admit immediately and I do not remember anything else.  Because I have petit mal.  That thing where I do no remember stuff.

I was transferred to Mercy Medical do not remember same reason.  When next I became aware of anything the viral death tole was 12000.  I was in a regular room and developed pauses.  I was trasferred to ICU.  Heart doctor saw me and say pacemaker. 

Next day got  pacemaker inserted.  Much better now. Discharged next day.
I was awake for the pacemaker.  I felt all the shoves.  I have bruises to prove it.

Husband came over to take me home.

If anyone called abd chatted with me I do not remember.  I hope we had a silly good time.  Tim says I was super chatty.  Yeek. 

My cardiac meds were eliminated and now I have ten or so fewer to put in pill boxes.  Yay.  It is still a whole ye gods bunch if pills.  Because of my kidney syndrome applesauce tastes bitter.  Must find some else to gulp down the medication.  Oh I wonder if Rocky Road would work.  Yep  it tastes delicious.

In summary, I was in Er twice, in Bay Area once and in Mercy Medical twice.  All of which I do not remember except first ER visit and the last Mercy visit.  I wish not to do this again.

We are considering Home Health evaluation.  And a memory aid such as a large whige board with room for seven days of activities just in came I forget, ah that's what happened.

I will shecedule with Dr. Holland and talk about the many new diagnoses and ask her if she thinks a referal to neurology is appropriate.  Ick. 

Wednesday, April 1, 2020

THANK YOU, GOD

V
thank you God.  I don't have cancer and I am an idiot.

This past Friday, I was watching Wheel of Fortune.  When it was over, it took me a few minutes to even notice what happened.  The program ended and I thought, what happened?  I had missed 20 minutes.  That was weird.  So I Googled it, you know how Google offers up dozens of answers? Straight to Brain Tumor.  Huh. 

I owned it immediately.  Surgery, no biggie, chemo ugh. Survival to 5 years 30 percent.  I would have lived that long without the diagnosis.  Worried all night about whether to tell husband.

In the morning, I told him.  He was a rock!

We spent the day at dialysis. I told the nurse. She laughed and said Did Not. Ok.

Went home and thought to myself, I should examine the other question of the diagnosis.  What neurological condition causes absence (French).  Google pointed right at Petit Mal seizure.  Ah,  I would be unusual at 25 minutes and 2 hours at dialysis.  Will have Dr. Holland order me an ECG.  I won't be on meds. Win! Win!

Told husband, God bless him, didn't even roll his eyes.